I have written about how some with a cancer diagnosis loathe the language around words like,
The Alzheimer Society of BHQ writes:
By consciously using language in a more sensitive manner, we can avoid reducing individuals
with Alzheimer’s disease and other dementias to a series of labels, symptoms or medical terms.
The Alzheimer Society has developed these language guidelines as a tool for anyone who lives
with, supports or cares about a person living with Alzheimer’s disease or another dementia.
The Alzheimer Society has developed Person-Centred Language Guidelines as a tool for anyone who lives with Alzheimer's disease and other dementias or supports someone who does. By consciously using language in a more respectful manner, we can all reduce the stigma of the disease. Download your copy.
Elizabeth Allen's Open Letter on Alzheimer's to her friends and family
In part, she said:
Don't offer me platitudes, telling me that everyone forgets where they puts their keys isn't what I face. Dementia is different than this.Don't dismiss me.Ask me questions: What are your symptoms? What are your medications are you taking? How are you doing?
Have an open and honest conversation, just as if I had cancer or another disease.There are many stages to this disease, this is one phase and for now treat me with respect. See me as the person I am now and not how I will be in the future.Enjoy us for the things we all still do.Let me make mistakes and understand I am not perfect. Don't run away from the disease, you run away from your friends.See us for who we are, and not for our disease.