The impact of the Freedom of Information Protection and Privacy Act (FIPPA) vs. the Personal Health Information Protection Act (PHIPA) is huge.
Professionals confuse privacy and personal choices.
Truthfully, PHIPA over rides FIPPA. How can a healthcare worker send someone home, to a space where their basic needs will not be met? For someone dying to be sent to be cared for by family members unable to cope, is a huge mistake. Their safety and well-being is compromised.
If you live in poverty, you are at-risk from the attitudes and behavours of those around you. If you are surrounded by those who treat you with negative attitudes and disrespect, it makes the final journey very difficult.
We look at those participating in end-of-life care:
- family physician, nurses, PSW, volunteers, and family members.
Those living in poverty or on disability face many issues.
Partly, it is giving in to physician's wishes, without making informed decisions about what is best for the care recipient and the family.
Simple supports: assistive devices, hygiene, access to simple things like laundry, liquid diet supplements, or assistance with ADLs, may or may not be available to the poor, and they are not available to the working poor.
- PSW regulation and better training
- Upgrading for all professionals who work with palliative patients.
- Patient advocates
- Supportive living placements
- A refusal to accept that people should be allowed to die at home in poverty and filth with Home Care that will not support their needs. These people are entitled to hospital care and a hospital bed.