These are all of the books and journal articles I read in preparation for caring for my father, as well as writing my book.
Advocacy Centre for the Elderly (ACEL) and Community Legal Education Ontario (CLEO). 2005. Every Resident: LTC Bill of Rights. Retrieved February 28, 2008, from www.cleo.on.ca/english/pub/onpub/PDF/seniors/everyres.pdf.
Alberta Mental Health Board. 2006. Mending Minds: 2006 AMHB Research Showcase. Alberta: Author.
Albom, M. 2002. Tuesdays with Morrie. New York: Broadway.
Alexopoulos, G.S. 2005. Depression in the Elderly. Lancet, 365(9475), 1961–70.
American Psychiatric Association. 1994. Diagnostic and Statistical Manual of Mental Disorders (4th Ed.), Washington, D.C.: Author.
Anhensel, C.S., et al. 1995. Profiles in caregiving: The unexpected career. San Diego: Academic Press.
Appleby, L., Cooper, J., Amos, T., & Faragher, B. 1999. Psychological autopsy study of suicides by people aged under 35. British Journal of Psychiatry. 175, 168–74.
Avis, N. E. 2003. Depression during the menopausal transition. Psychology of Women Quarterly, 27 (2), 91–100.
Balducci, L., & Carreca, I. 2002. The role of myelopoietic growth factors in managing cancer in the elderly. Drugs, 62(1), 47–63.
Balkin, R.S., Tietjen–Smith, T., Caldwell, C., & Yu-Pei, S. 2007. The utilization of exercise to decrease depressive symptoms in young adult women. Adultspan: Theory Research & Practice, 6(1), 30–33.
Beery, L.C., et al. 1997. Traumatic grief, depression and caregiving in elderly spouses of the terminally ill. Journal of Death and Dying, 35(3).
BrainHospice.com. n.d. Symptoms Timeline (for those approaching death). Retrieved November 14, 2007, from www.brainhospice.com/SymptomTimeline.html.
Brain Tumour Foundation of Canada. 2003. Retrieved June 16, 2008 from www.braintumour.ca.
Brant LTC Best Practices Work Group. May 2007. Reference guide for pain assessment, care planning and monitoring. Retrieved August 25, 2007, from www.rgpc.ca/research/research.cfm.
Bredeson, P.V. 2003. Breaking the silence: Overcoming the problem of principal mistreatment of teachers. California: Corwin Press.
Breslin, J.M., MacRae, S.K., Bell, J., & Singer, P.A. 2005. Top 10 health care ethics challenges facing the public: Views of Toronto bioethicists. BioMed Central Limited, 6, 5. Retrieved February 28, 2008, from
Bruera, E., et al. 1991. The Edmonton symptom assessment system (ESAS): A simple method for the assessment of palliative care patients. Journal of Palliative Care. 7 (2): 6–9. Retrieved February 28, 2008, from www.palliative.org/PC/ClinicalInfo/AssessmentTools/AssessmentToolsIDX.html.
Burton, L.M., & Merriwether–deVries, C. 1995. Context and surrogate parenting among contemporary grandparents. Marriage & Family Review, 20 (3.4), 349–66.
Bush, A., & Carter, P.A. 2004. The effect of cancer patients’ pain and fatigue on caregiver depression level and sleep quality. Journal of Undergraduate Nursing Scholarship, 6 (1) Retrieved January 22, 2008 from http://juns.nursing.arizona.edu/contents6.htm.
Callahan, C.M., Hendrie, H.C., & Tierney, W.M. 1995. Documentation and evaluation of cognitive impairment in elderly primary care patients. Annals of Internal Medicine 122, 422–29.
Canadian Mental Health Association 2006. Suicide. Retrieved June 28, 2007 from www.ontario.cmha.ca/content/about_mental_illness/suicide.asp?cID=3965.
Canadian Study of Health and Aging Working Group. 1994. Patterns of caring for people with dementia in Canada. Canadian Journal of Aging. 13, 470–87.
Canadian Study of Health and Aging Working Group. 2002. Patterns and health effects of caring for people with dementia: The impact of changing cognitive and residential status. Gerontologist, 42(5), 643–52.
Canadian Women’s Healthcare Network 1998. Caregiving still in women’s job description. Retrieved June 30, 2008, from
Cancer Care Nova Scotia. Patient Navigation. Retrieved June 14, 2008, from www.cancercare.ns.ca/inside.asp?cmPageID=89.
Caprio, A. J., et al. 2008. Pain, dyspneas, and the quality of dying in long-term care. Journal of the American Geriatric Society, 56 (4), 683–88.
Capuron, L., et al. 2002. Association between decreased serum tryptophan concentrations and depressive symptoms in cancer patients undergoing cytokine therapy. Molecular Psychiatry, 7(5), 468–73.
Cole, M.G. 2004. Delirium in elderly patients. American Journal of Geriatric Psychiatry, 12, 7–21.
Comino, E.J., et al. 2000. Prevalence, detection and management of anxiety and depressive symptoms in unemployed patients attending general practitioners. Australian & New Zealand Journal of Psychiatry. 34(1), 107–13.
Cotton, C. 2004. About lymphedema. Retrieved on-line, May 24, 2008, from lymphontario.org.
Cummings, J.L., & Jeste, D.V. 1999. Alzheimer’s disease and its management in the year 2010. Retrieved August 29, 2008, from http://www.psychservices.psychiatryonline.org/cgi/content/full/50/9/1173#R50910912.
Depression Bipolar Support Alliance. Retrieved July 21, 2007, from www.dbsalliance.org.
Doidge, N. 2004. Making the Modern World. Measuring the unmeasurable: An introduction to psychology. Retrieved June 25, 2007 from www.makingthemodernworld.org.uk/learning_modules/psychology/02.TU.04/
———. 2007. The brain that changes itself. New York: Penguin.
Emick, M. A., & Hayslip, B. 1999. Custodial grandparenting: Stress, coping skills, and relationships with grandchildren. International Journal of Aging and Human Development. 48(1), 35–61.
Feil, D. G., MacLean, C., & Sultzer, D. 2007. Quality indicators for the care of dementia in vulnerable elders. Journal of the American Geriatric Society, 55, 293–301.
Forster, A. J., et al. 2004. Adverse events among medical patients after discharge from hospital. Canadian Medical Association Journal. 170, 345–49.
Frankl, V. 2006. Man’s search for meaning. Boston: Beacon Press.
Gallagher–Thompson, D., & Coon, D.W. 2007. Evidence-based psychological treatments for distress in family caregivers of older adults. Psychology and Aging, 22(1), 37–51.
Gaugler, J.R., Zarit, S.H., & Pearlin, L.I. 1999. Caregiving and institutionalization: Perceptions of family conflict and socioemotional support. International Journal of Aging and Human Development, 49(1), 1–25.
Goldberg, N. 2005. Writing down the bones. 2nd ed. Boston, MA: Shambhala.
Government of Canada. 2000. Quality end-of-life-care: The right of every Canadian. Retrieved February 22, 2008, from www.parl.gc.ca/36/2/parlbus/commbus/senate/Com-e/upda-e/rep-e/repfinjun00-e.htm.
Grafton, S. 2007. T is for trespass. New York: GP Putnam & Sons.
Grov, E.K., Fossa, S.D., Tonnessen, A., & Dahl, A.A. 2006. The caregiver reaction assessment: Psychometrics, and temporal stability in primary caregivers of Norwegian cancer patients in late palliative phase. Psycho-Oncology, 15, 517–27.
Grunfeld, E., et al. 2004. Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. Canadian Medical Association Journal, 170 (12).
Gulli, C. & Lunau, K. 2008. Canada’s doctor shortage worsening. Retrieved on-line June 30, 2008, from www.thecanadianencyclopedia.com/index.cfm?PgNm=TCE&Params=M1ARTM0013191.
Hamilton, M. 1960. A rating scale for depression. Journal of Neurology, Neurosurgery and Psychiatry, 23, 56–62.
Health Canada. 2002. Investigation and assessment of the navigator role in meeting the information, decisional and educational needs of women with breast cancer in Canada. Retrieved on-line August 28, 2008, from www.phac-aspc.gc.ca/ccdpc-cpcmc/cancer/publications/navigator_e.html.
Heart’s Way Hospice. 2006. As death approaches. Retrieved June 14, 2008, from www.heartswayhospice.org/as_death_approaches.htm.
Heckman, G. 2004. The hazards of health care. Retrieved August 29, 2008, from www.rgpc.ca/files/Hazards%20of%20Hospitalization%20Role%20of%20Geriatrics%20Rev.ppt.
Heru, A.M., & Ryan, C.E. 2002. Depressive symptoms and family functioning in the caregivers of recently hospitalized patients with chronic/recurrent mood disorders. International Journal of Psychosocial Rehabilitation, 7, 53–60.
Hodkinson, H. 1972. Evaluation of a mental test score for assessment of mental impairment in the elderly. Age and Ageing, 1, 233–38.
Holmes, H.M., Hayley, D.C., Alexander, G.C., & Sachs, G.A. 2006. Reconsidering medication appropriateness for patients late in life. Archives of Internal Medicine, 166, 605–9.
Holmes, H. M., et al. 2008. Integrating palliative medicine into the care of persons with advanced dementia: Identifying appropriate medication use. Journal of the American Geriatrics Society. Published article on-line: 14-May-2008 doi: 10.1111/j.1532-5415.2008.01741.x.
Hosseini, K. 2007. A thousand splendid suns. USA: Penguin Group.
Human Resources and Social Development Canada. 2008. Indicators of well-being in Canada. Retrieved August 28, 2008, from www4.hrsdc.gc.ca/indicator.jsp?indicatorid=3〈=en
Ingram, J. 1994. Talk, talk, talk. USA: Random House.
Jennett Chapel. 2007. A celebration of life. Retrieved September 2, 2007 from www.funeralhome.on.ca/burial_cremation.htm.
Jilks, J. 2007. The use of autobiography in therapy: A Gestalt-based approach. Retrieved February 27, 2008, from www.jilks.com/articles/AutobiographyTherapy.htm.
Kim, Y., Duberstein, P.R., Sørensen, S., & Larson, M. (2005). Levels of depressive symptoms in spouses of people with lung cancer: Effects of personality, social support, and caregiving burden. Psychosomatics, 46, 126–30.
King, S. 2006. Pink ribbons, inc.: Breast cancer and the politics of philanthropy. Minn.: University Of Minnesota Press.
Kübler–Ross, E. 1997. Death: The final stage of growth. Carmichael, CA: Touchstone Books.
———. (1998). The wheel of life: A memoir of living and dying. Carmichael, CA: Touchstone Books.
Kübler–Ross, E., & Kessler, D. 2005. On grief and grieving: Finding the meaning of grief through the five stages of loss. New York: Scribner.
Kushner, H. S. 2006. Overcoming life’s disappointments. USA: Random House.
Logsdon, R.G., Gibbons, I.E., & McCurry, S.M., et al. 1999. Quality of life in Alzheimer's disease: patient and caregiver reports. Journal of Mental Health and Aging, 5, (1).
Magai, C. & Cohen, C.I. 1998. Attachment style and emotion regulation in dementia patients and their relation to caregiver burden. Journal of Gerontology Psychological Sciences, 53B(3), 147–54.
Mausbach, B.T., et al. 2007. Depression and distress predict time to cardiovascular disease in dementia caregivers. Health Psychology, 26, 539–44.
Mood Disorders Association of Ontario. n.d. Depression. Retrieved June 28, 2007, from www.mooddisorders.on.ca/dep.html.
Morimoto, T., Schreiner, A.S., & Asano, H. 2001. Perceptions of burden among family caregivers of post-stroke elderly in Japan. International Journal of Rehabilitation Research, 24, 106.
Nease, D.E., & Malouin, J.M. 2003. Depression screening: A practical strategy. Journal of Family Practice, 52(2), 118–26.
Nemeroff, C.B., & Owens, M.J. 2002. Treatment of mood disorders. Nature Neuroscience, 5(11), 1068–70.
Nunley, K. 2003. A student’s brain: The parent/teacher manual. Boston: Morris Publ.
Ohgaki, H., & Kleihues, P. 2005. Journal of Neuropathology Experimental Neurology, 64(6), 479–89.
Ontario Government. n.d. Accessing a long-term care facility. Retrieved January 23, 2008, from www.health.gov.on.ca.
O’Rourke, N., & Tuokko, H. 2000. The psychological and physical costs of caregiving: The Canadian Study of Health and Aging. Journal of Applied Gerontology, 19(4), 389–404.
O’Rourke, N., Cappeliez, P., & Neufeld, E. 2007. Recurrent depressive symptomatology and physical health: A 10-year study of informal caregivers of persons with dementia. Canadian Journal of Psychiatry, 52(7), 434–41.
Pagel, M., & Becker, J. 1978. Depressive thinking and depression: relations with personality and social resources. Journal of Personality and Social Psychology, 52(5), 1043–52.
Pennebaker, J.W. 2004. Writing to heal: A guided journal for recovering from trauma & emotional upheaval. Oakland, CA: New Harbinger.
Phillips, D. n.d. Seeking peace: Brain tumour hospice care. Retrieved November 14, 2007, from www.brainhospice.com/index.html.
Picard, A. 2008. The orphans of medicare. Retrieved on-line June 30, 2008, from www.theglobeandmail.com/servlet/story/RTGAM.20080623.wmhhospitals24/BNStory/mentalhealth.
Pinel, J. 2006. Basics of biopsychology. Toronto: Pearson, Allyn & Bacon.
Rachlis, M. 2005. Prescription for excellence. Retrieved August 29, 2008, from http://www.michaelrachlis.com/publications.php.
———. 2006. Seniors’ health: We can’t afford the future if we don’t repeat the past. Retrieved August 29, 2008, from www.coaottawa.ca/health_forum/DrRachlis.ppt.
Rachlis, V. 2005. “Inside out”: Letter from the president, Dr. Val Rachlis. Retrieved June 30, 2008, from www.ocfp.on.ca/local/files/Communications/Ltr2Mbrs/2005/Ltr2MbrFeb15-05.pdf.
Redinbaugh, E.M., MacCallum, R.C., & Kiecott–Glaser, J. K. 1995. Recurrent syndromal depression in caregivers. Psychology and Aging, 10 (3), 358–68.
Regional Geriatric Program. 2006. BP Blogger. Retrieved September 15, 2007, from www.rgpc.ca.
Reker, G.T. 2002. Prospective predictors of successful aging in community-residing and institutionalized Canadian elderly. Ageing International, 27, 42–64.
Rudolph, J.L., & Marcantonio, E.R. 2003. Diagnosis and prevention of delirium. Geriatrics & Aging, 6 (10), 15–19. (www.geriatricsandaging.ca)
Semple, S.J. 1992. Conflict in Alzheimer’s caregiving families: Its dimensions and consequences. The Gerontologist, 32, 648–55.
Schreiner, A.S., & Morimoto, T. 2003. The Relationship between mastery and depression among Japanese family caregivers. International Journal of Aging and Human Development. 56(4), 307–21.
Sherman, F.T. n.d. The 10 minute geriatric assessment. Retrieved February 23, 2008, from www.sergp.org/Presentations/The 10 Min Geriatric Assessment.ppt.
Shrank, W.H., Polinski, J.M., & Avorn, J. 2007. Quality indicators for medication use in vulnerable elders. Journal of the American Geriatrics Society, 55(2), 373–82.
Sigelman, C.L., & Rider, E.A. 2006. Life span human development (5th ed.). Belmont: Thomas Wadsworth.
Solomon, P.R., et al. 1998. Ten-minute geriatric assessment. Arch Neurology, JJ, March 1998, 349–55. Retrieved online May 14, 2008, from www.sergp.org/toward_best_geriatric_practice.htm.
Statistics Canada. 1997. A portrait of seniors in Canada, Second ed. Ottawa: Author.
Statistics Canada. 2006. A portrait of seniors in Canada. Ottawa: Author.
Tang, S.T., Li, C.W., & Liao, X.Y. 2007. Factors associated with depressive distress among Taiwanese family caregivers of cancer patients at the end of life. Palliative Medicine, 21(3), 249–57.
Tavris, C., & Aronson, E. 2007. Mistakes were made (but not by me): Why we justify foolish beliefs, bad decisions, and hurtful acts. New York: Harcourt.
Taylor, J. 2008. My stroke of insight: a brain scientist’s personal journey. New York: Viking.
Twaddle, M.L., et al. 2007. Palliative care benchmarks from academic medical centers. Journal of Palliative Medicine, 10(1), 86–98.
Watson, Y.L., Arfken, C.L., & Birge, S.J. 1993. Clock Completion: An objective screening test for dementia. Journal of the American Geriatric Society, 41, 1235–40.
Wenger, N.S., Roth, C.P., & Shekelle, P. 2007. Introduction to the assessing care of vulnerable elders-3 Quality Indicator Measurement Set. Journal of the American Geriatrics Society, 55(2), 247–52.
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