Saturday, June 13, 2009

dying with dignity

There is a difference between being hopeful, and having hope; feeling weak (physically,spiritually, socially or emotionally), and feeling hopeless. You can accept your situation and still have hope.

What you feel is not wrong. What you feel ...simply is. Acknowledge your feelings.

Remember, it is not your job to make others feel anything, you need not perform for them, behave a certain way, or feel certain things, but it does help you to talk about what you feel: honestly, and others to understand where you are in your journey. Give yourself permission to be yourself.

I wrote about my journey to help others. There are many lessons. Life is a journey and a classroom. I share my tales of the palliative care, since I lived through it.

This is the time to reach out. What you accept from others (time, energy, support) helps them, too. You should expect to make certain preparations. Forewarned is forearmed. Everyone's journey is different, but there are lessons and things to make the journey easier for you, family and friends.

Remember, you are a beautiful person. "God don't make no junk!"

Check out:

National Hospice Organization – www.nho.org/ - The National Hospice Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

Care for Dying Patients With Primary Malignant Brain Tumor
—Respecting Dignity—
PDF (103K)
Kunihiko WATANABE1) and Rod MACLEOD2)
1) Division of Neurosurgery, Tochigi Cancer Center
2) Department of General Practice (Palliative Care), University of Otago, Dunedin School of Medicine
(Received February 8, 2005)
(Accepted June 15, 2005)
Abstract
Patients with primary malignant brain tumor experience deterioration of multi-focal neurological deficits such as hemiparesis, aphasia, visual field defects, dysphagia, and disturbance of recent memory at the advanced stage of disease. With these advancing neurological deficits, many patients will inevitably prepare for death and may experience psychological and spiritual distress. Active listening is an important skill to explore the fears of patients with a terminal illness but in the advanced stage of a primary brain tumor, patients usually have great difficulty with verbal expression. Even if patients do not suffer from complete expressive aphasia, they often have difficulty verbalizing their thoughts and feelings. Sadly, disturbance of vocal expression is a common accompaniment of this pathology. Unless the pathophysiology is understood, an observer may fail to comprehend the patient's non-verbal communication. Seeking to understand these issues is a prerequisite of the preservation of dignity and provision of ethical care for such patients.
Cambridge Quarterly of Healthcare Ethics (2003), 12:3:322-325 Cambridge University Press
Copyright © 2003 Cambridge University Press
doi:10.1017/S096318010312316X

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